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Rare cancers – who cares?

We care. That’s why we give projects investigating rare cancers just the same priority as those affecting more common types of cancer.

For Rare Disease Day 2015 we asked three Worldwide Cancer Research scientists working on rare cancers why they care, and what they hope to achieve.

Dr Maria Paola Paronetto, Fondazione Santa Lucia, Rome, Italy:

“I work on the rare cancer Ewing’s sarcoma because it is a cruel tumour which nestles into bone and soft tissue of children- and we need a better solution than amputation and multidrug chemotherapy.”

“If successful, I hope my research into Ewing Sarcoma will help affected children have a chance for a normal life.”

See more about Dr Paronetto’s work.

Find out more about Ewing’s sarcoma.

Dr Anna Bigas, Fundacio IMIM, Barcelona, Spain:

“I work on the rare cancer T-acute lymphoblastic leukemia (T-ALL) because it is a devastating disease affecting both children and adults.”

“We need research into T-ALL because, although current therapies have greatly improved the survival for children, a minority are still not cured. In addition, adult patients still have a very poor rate of disease-free survival (the length of time a patient lives without the cancer coming back).”

"If successful, I hope my research into T-ALL will help to understand how this disease develops, and identify new targets for therapy.”

See more about Dr Bigas’ work.

Find out more about T-acute lymphoblastic leukemia.

Dr Jeroen van Bergen, Leiden University Medical Center, Netherlands:

"I hope my research into the rare cancer enteropathy-associated T-cell lymphoma will help to develop new therapies for this deadly disease.”

See more about Dr van Bergen’s work.

Find out more about enteropathy-associated T-cell lymphoma.